Involvement of consumers in the development of evidence based clinical guidelines: practical experiences from the North of England evidence based guideline development programme

Hdl Handle:
http://hdl.handle.net/10149/58240
Title:
Involvement of consumers in the development of evidence based clinical guidelines: practical experiences from the North of England evidence based guideline development programme
Authors:
van Wersch, A. (Anna); Eccles, M. (Martin)
Affiliation:
University of Newcastle upon Tyne. School of Health Sciences. Centre for Health Services Research.
Citation:
van Wersch, A. and Eccles, M. (2001) 'Involvement of consumers in the development of evidence based clinical guidelines: practical experiences from the North of England evidence based guideline development programme', Quality in Health Care, 10 (1), pp.10-16.
Publisher:
BMJ Publishing Group
Journal:
Quality in Health Care
Issue Date:
2001
URI:
http://hdl.handle.net/10149/58240
DOI:
10.1136/qhc.10.1.10
Abstract:
Background: Consumer involvement in clinical guidelines has long been advocated although there are few empirical accounts of attempts to do so. It is therefore not surprising that there is a lack of clarity about how and when to involve consumers and what to expect from them within the process of guideline development. Methods: The North of England evidence based guideline development programme has used four different methods of consumer involvement. Results: When individual patients were included in a guideline development group they contributed infrequently and had problems with the use of technical language. Although they contributed most in discussions of patient education, their contributions were not subsequently acted on. In a “one off” meeting with a group of patients there were again reported problems with medical terminology and the group were most interested in sections on patient education and self management. However, their understanding of the use of scientific evidence in order to contribute to a more cost effective health care remained unclear. In a workshop it was possible to explain the technical elements of guideline development to patients who could then engage with such a process and make relevant suggestions as a consequence. However, this was relatively resource intensive. A patient advocate within a guideline development group felt confidence to speak, was used to having discussions with health professionals, and was familiar with the medical terminology. Conclusions: Consumers should be involved in all stages of guideline development. While this is possible, it is not straightforward. There is no one right way to accomplish this and there is a clear need for further work on how best to achieve it.
Type:
Article
Keywords:
patient involvement; patient education; guideline development groups; clinical guidelines; North England; consumers; evidence based
ISSN:
0963-8172
Rights:
Author can archive publisher's version/PDF. For full details see http://www.sherpa.ac.uk/romeo/ [Accessed 12/01/2010]
Citation Count:
23 [Scopus, 12/01/2010]

Full metadata record

DC FieldValue Language
dc.contributor.authorvan Wersch, A. (Anna)-
dc.contributor.authorEccles, M. (Martin)-
dc.date.accessioned2009-04-01T10:46:51Z-
dc.date.available2009-04-01T10:46:51Z-
dc.date.issued2001-
dc.identifier.citationQuality in Health Care; 10 (1): 10-16-
dc.identifier.issn0963-8172-
dc.identifier.doi10.1136/qhc.10.1.10-
dc.identifier.urihttp://hdl.handle.net/10149/58240-
dc.description.abstractBackground: Consumer involvement in clinical guidelines has long been advocated although there are few empirical accounts of attempts to do so. It is therefore not surprising that there is a lack of clarity about how and when to involve consumers and what to expect from them within the process of guideline development. Methods: The North of England evidence based guideline development programme has used four different methods of consumer involvement. Results: When individual patients were included in a guideline development group they contributed infrequently and had problems with the use of technical language. Although they contributed most in discussions of patient education, their contributions were not subsequently acted on. In a “one off” meeting with a group of patients there were again reported problems with medical terminology and the group were most interested in sections on patient education and self management. However, their understanding of the use of scientific evidence in order to contribute to a more cost effective health care remained unclear. In a workshop it was possible to explain the technical elements of guideline development to patients who could then engage with such a process and make relevant suggestions as a consequence. However, this was relatively resource intensive. A patient advocate within a guideline development group felt confidence to speak, was used to having discussions with health professionals, and was familiar with the medical terminology. Conclusions: Consumers should be involved in all stages of guideline development. While this is possible, it is not straightforward. There is no one right way to accomplish this and there is a clear need for further work on how best to achieve it.-
dc.publisherBMJ Publishing Group-
dc.rightsAuthor can archive publisher's version/PDF. For full details see http://www.sherpa.ac.uk/romeo/ [Accessed 12/01/2010]-
dc.subjectpatient involvement-
dc.subjectpatient education-
dc.subjectguideline development groups-
dc.subjectclinical guidelines-
dc.subjectNorth England-
dc.subjectconsumers-
dc.subjectevidence based-
dc.titleInvolvement of consumers in the development of evidence based clinical guidelines: practical experiences from the North of England evidence based guideline development programme-
dc.typeArticle-
dc.contributor.departmentUniversity of Newcastle upon Tyne. School of Health Sciences. Centre for Health Services Research.-
dc.identifier.journalQuality in Health Care-
ref.assessmentRAE 2008-
ref.citationcount23 [Scopus, 12/01/2010]-
or.citation.harvardvan Wersch, A. and Eccles, M. (2001) 'Involvement of consumers in the development of evidence based clinical guidelines: practical experiences from the North of England evidence based guideline development programme', Quality in Health Care, 10 (1), pp.10-16.-
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